Saturday, August 23, 2008

Finally a free moment

I am going to take advantage of this moment... Drew is sleeping and I have oh so responsibly put Peyton in front of the TV so I can try to catch you all up.  It has been quite a busy last two weeks for us.  Time is all blurring together and I thought I lost track of time when Drew was a newborn - now time is a whole new thing for me!  I could use 48 hours in a day to get all the stuff done we have to do in 24 hours!  I won't complain too much though because I have a wonderful husband who has been  helping out so much and I just adore my two little boys.  They are the best!
My mom left two and a half weeks ago and we have been trying to learn how to balance life without her here.  I have to figure out how to get everything done that has to get done and still meet the boys individual needs.  I quickly noticed that Peyton is going to need some special one-on-one time and that I am going to need some help around here if I want to be able to find my house in the mess, cook, do therapy with Drew, and make it to appointments!  We had the social worker and palliative care doctor and nurse over on Wednesday last week for a home visit and after going over Drew's case they have determined we qualify to have a paid helper 4 hours a day for 5 days a week.  That felt good to know that someone besides myself thinks there is alot to do.  Fortunately we won't have to pay for this as Drew's condition warrants external financial support.  They are also going to apply for housekeeping support on an occasional basis for us.  I don't know what that will look like yet, but just the thought of that makes me feel about 10 loads lighter!  I have been doing pretty well emotionally through all this so far, but the last couple days I have been really overwhelmed.  I can't seem to keep up.  How did we end up with so many #1 priorities and how do they all fit!?  It would help if my brain could function - I started doing laundry on Tuesday and because I kept forgetting to turn the dryer on or change loads I am finally finishing it today!  Yipes!  


Nicole said...
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Nicole said...

I know you're feeling overwhelmed, but I want you to know that you're doing great. Seriously, though, clean clothes are highly overrated, and I know you are focusing where you need to. I'm thankful that you are going to get some more support, and I'll start praying now that it is truly helpful support and that you and your boys connect emotionally to those who get to help you. Love you, Nicci