I really just want my little Drew back - I miss him. Insert tears here... ok, I'll be alright. Anyway, with all the extra doses we've had to give Drew lately he's not really been himself, and he's also not interested in eating right now either. He was doing quite well for a while there, but he's not into food right now. He is fortunately still nursing pretty well and the feeding tube is doing it's job in keeping the weight on thank God. That is one stress that is pushed to the back burner for now, and I just don't even mind doing the tube thing anymore!!!
We are doing alright most days, and had a wonderful week in Canmore with my parents last week. What a peaceful place! There is just no place like the mountains. On one hike we did last week, I just kept thinking about the massiveness and majesty of the mountain underfoot, how great my God is and how he knows all about this little sparrow of his that is struggling. That comforts me like nothing else, while challenging me at the same time.
The doctor mentioned he is expecting some preliminary results as early as this week or next from Calgary and/or Toronto. We are praying more fervently now that it is coming closer that there will be some good news. I pray every day primarily for healing, but also with alot of uncertainty about what to pray. I just pray that God will bless my little Drew, his brother, our possibilities for future children and our family in the best way He can. This article has been really helpful and says better than I can what's been going through my head. The verse from Romans about suffering producing character, endurance and hope and further, a hope that does not disappoint has been in the front of my mind for some time - this just helped put a new spin on it. If you get a chance you should check this out - http://www.liveasif.org/view.cgi?article=3803. Anyway, enough on that for now. I should probably sign out and get to bed before Drew wakes up! Thank you for keeping us in your thoughts and prayers.
Prayers for the week:
Peace for Jordan and I
Please pray (we are praying hard) that Drew's new antiseizure med will work to stop the seizures or at least to manage them well!!!!!!!
Drew is not using his left side still - as I am his primary therapist I am feeling a little discouraged and partly responsible. Please pray that God will give me endurance, some good ideas and some hope here, and that Drew will get some movement on this side of his body.
We are thankful for the way God has been involved so far, and that He does not abandon us!