Speaking of time, it occurred to me that it has been three months now since this all began. Usually I feel as though time has been flying, but April feels like it was years ago. What a mind trip this has all been. Some days feel like way more than 24 hours!
Sunday, August 10, 2008
The Dr. didn't believe us...
So we were back to the ER again Saturday afternoon with little Drew. We had increased his two anti-seizure meds Friday at the neurologist's direction so I expected him to be a little dopey Saturday, but he was really dopey. Saturday afternoon his eyes started deviating to the left and he wouldn't look at us or at things we put on the right side of his head. It was like he could hear them but wouldn't look over there, or couldn't! His eyeballs were wiggling too - and I'm pretty sure he wasn't doing it on purpose. Anyway, he seemed conscious but very out of it. We called the neurologist on call (fortunately at this point we have 24 hour access, thank God) and he said he would like to see Drew so we loaded up and off Drew and I went to the ER. We got to the ER and the nurses quickly noticed he was seizing and started calling for doctors. I was calmer than they were amazingly. The doctor came in and started asking questions, "How long has he been having this seizure?" I answered that it had been about 11 weeks or so and he said, "No. How long has he been having THIS seizure?" I answered again that it had been about 11 weeks. He was having a hard time understanding me. I then explained that this was a new variation but that it hadn't stopped in 11 weeks or more. He was getting a little frustrated with me at this point I think and kept rewording his question to see if he could get a different answer. The best part of the situation was when one of Drew's neurologists finally walked in during this conversation and the ER doctor turned to him and asked how long Drew had been seizing and the neurologist said, "About 11 weeks." It's really amazing where you find opportunities to laugh in the middle of all this, but that seemed like a good one to me. I had to hold the laugh til later though. The ER doctor was a great doctor, he just didn't know what to think of the situation. He was ready to put Drew into a coma and intubate him (breathing support) to try to stop it - I was sure glad the neurologists came quickly! If they hadn't come quickly enough I think they may have arrived to see me wrestling the nurses and doctors to keep them from doing that to Drew! At this point, that's the last thing he would need. It would put him back that much further in his development and as much as they hoped that would stop the seizures, so far any time we have anesthetized him his seizures start right back up when he wakes up. If we thought that would work we would have done that a long time ago!